April is
Autism Awareness Month, which seems like a good time to reflect on technology and how it can help people with disabilities.
For those of you unfamiliar with
Autism, you can do some background reading over on Wikipedia -- but it's not really a substitution for dealing with Autistic people. The problem with Autism is that it takes hundreds of different forms, and diagnosing it is mostly a process of eliminating everything else.
Autism is something I'm very familiar with because my sister was diagnosed with severe Autism at the age of five. This was after three years of doctors' appointments, hearing tests, and general chaos. I've met many Autistic people in my life, and that's why I feel quite assured in telling you that no two are the same or exhibit the same symptoms.
There are, however, some traits that most Autistic people share:
- Symptoms become apparent in very early childhood
- Symptoms include impaired social awareness and communication abilities
- Focus on routine and repetition with resistance to change
- Fixation on objects or certain sounds, textures, sensations, etc.
Life With My Sister

This is my sister, Kim. She's on the right, if you're curious. That's me beside her at my bridal shower :) She was helping me open all the presents, because that's what she does.
Kim is 28 now. She still lives with my parents and will always need to live with someone. When she was young (like six or seven), she was almost completely nonverbal. She communicated, when prompted, through pointing at pictures in a small notebook she carried with her. Other times, she communicated through temper tantrums.
Kim talks now. Like, a lot. A LOT. Kind of non stop. And if you don't respond to every thing she says, she becomes very upset. Temper tantrums are annoying when a kid's 6. They're another story when she's 28. Kim is never aggressive towards other people, but in the course of her tantrums she can hurt herself and she has caused a lot of property damage in her time. Right now her things is tearing clothing to pieces. She's kind of like the Incredible Hulk, minus the green skin.
I'm staying with my sister for a week right now so my parents can take a bit of a holiday. We're actually having a fantastic week. I should make one thing clear: I love my sister beyond belief. She's my best pal. But she can drive me, and everyone around her, crazy. I've been lucky this week: she's been pretty darn happy, with only a few little meltdowns. Of course, most of the week has been me taking her places and buying her stuff, so...
Kim and the iPad
I've been trying to convince my parents for a while that Kim should have an iPad. They're understandably reluctant, given her unfortunate habit of hucking stuff across the room when she gets too angry. But over this week, I thought I'd bring home my iPad and see if she would get into it. I should add that it's very difficult to predict what Kim will enjoy. For example, her favorite toy in the world is bubble wrap. Okay, so she likes textiles. I spent a fortune buying her a special weighted blanket for Autistic people, and she won't touch the thing -- or any of the other sensory stuff I get her.
Except for dollar store balls. She likes those.
Anyway, the iPad. Like I said, it's impossible to predict what Kim will like, so I just downloaded about 20 different educational type apps. I did notice that they now have a lot of apps that would be extremely useful to her in her everyday life, including an electronic version of the communication booklet she used to carry, but I didn't want to pay for anything since she'll only have the iPad for this week.
As I predicted, some of the apps I thought she'd like, she didn't. But it was a good week for
Apps Gone Free (and if you haven't downloaded that app, go do it right now. I'll wait) since, with April being Autism Awareness Month, they had a lot of appropriate apps on.
So to my surprise, what does the kid fixate on? A series of apps from
www.kindergarten.com that show a series of four pictures and say things like "show me the musical instrument." Then you press the musical instrument and it cheers. Periodically it plays classical music at her and tells her she's so smart (which I keep thinking is in
direct violation of the growth mindset... oh well!).
She has, no exaggeration, been playing this game for two hours without a break. Every time I suggest she may want to try something else, she gets mad and tells me to go away. I'm surprised she's so fixated on this thing. I'm also surprised that she found it so easy to get used to the mechanics themselves, because my sister isn't known for her patience or learning curve. She does tend to press too hard on the screen, but she already understands the home key, how to slide the lock to activate the iPad, and how to recognize and open her new favorite app. This is honestly more than I thought she'd accomplish.
Reflections on Technology and Autism
So other than keeping her out of my hair for a few hours, I think the app is good for her -- most of it is stuff she already knows, but there have been a few new terms, and she seems to be getting them on the second and third go. In other words, she's learning something, which she doesn't get to do very often, sadly, since leaving high school.
I couldn't have predicted that Kim would love this specific app, and I'm sure there are others out there she would enjoy, too. The iPad is something that could be really beneficial for her. I really want her to try Skyping, too, since she won't talk to me (or anyone) on the phone -- something about the feel of it on her ear, I think, along with a lack of association between the voice on the phone and the person she's talking to.
This means that, for my sister, the iPad has the potential to:
- Continue her education, at least to a small degree
- Entertain her (which is no small thing, because she is frequently bored)
- Help her communicate with others
Those are three things that I could never have imagined a single device doing a few years ago. I teach in a mainstream classroom, which means I don't work closely with children with severe special needs. By severe, by the way, I mean students incapable of functioning without direct, constant one-on-one supervision, which describes my sister perfectly. That means I don't see a lot of how they're using the technology, although I'm aware that they are.
Spending this week with Kim and watching her use the iPad has been really illuminating, and has reminded me that -- for all its problems -- technology really has the power to make amazing changes in people's lives.
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